Roger Wilson was diagnosed with a sarcoma in 1999 and has had six recurrences. His latest surgery in 2013 was bilateral thoracic metastectomy. He has been a patient advocate since 2002 working in the UK’s cancer research community, chairing a number of national groups in prevention, survivorship, and palliative care. He is the longest serving member of the national NCRI Sarcoma Research Group. In 2003 he founded Sarcoma UK and co-founded Sarcoma Patients Euronet in 2009. He is now Hon President. He currently chairs EORTC’s Patient Panel. He has worked with policy makers and regulators in the UK and Europe. He has a particular interest in quality of life appraisal and in PROs, working with NCRI, the University of Birmingham Centre for PRO Research (CPROR) and with EORTC’s Quality of Life Group. He was appointed CBE in 2011 and has two honorary doctorates. By background he was a journalist and TV producer.